3 replies
January 19

audreygotobed

have you been put on oral cromolyn sodium for MCAS? for the skin burning, my dysautonomia specialist told me to take the liquid solution capsules i add to water and just smear the liquid on my skin like sunscreen-- it deactivates the histamine response in the skin itself and helps so much. i basically cannot exist in sunlight or heat without it.

1 reply
January 19 ▶ audreygotobed

ttscoff BrettTerpstra.com Supporter

I haven’t. Is that a prescription?

1 reply
January 20 ▶ ttscoff

audreygotobed

yeah! My dysautonomia specialist handles my RX but anyone you see that’s familiar with MCAS should be able to. I’d bring it up as something to try, at least!